NIV Congres

Background Kidney disease and transplantation can have a significant impact on the development and well-being of young individuals. The aim of this study was to investigate how coping and satisfaction of psychological needs (autonomy, competence and relatedness) are related to the outcomes of psychological well-being and social participation.

Method We conducted a cross-sectional, face-to-face interview study among kidney transplant recipients aged 21-30 currently enrolled at out our out-patient clinic. Exclusion criteria included having undergone a transplant in the past year, not speaking sufficient Dutch and cognitive limitations. The main outcomes were measured using the Positive And Negative Affect Schedule (PANAS), the Satisfaction With Life Scale (SWLS)] and the Course of Life Questionnaire (CLQ). Independent variables were: age at transplantation (Group 1 < 18 years; Group 2 > 18 years); psychological needs [Basic Psychological Needs Scale (BPNS)]; and coping strategies [COPE-easy].

Results Of the 93 invited, 66 (71%) patients participated (67% male, median age 25, 47% were in Group1 and 53% in Group 2). Group 1 reported significantly lower achievement of autonomy development milestones than Group 2 but no other differences in other outcomes. Satisfaction of all psychological needs, lower avoidance, greater active coping and lower substance use as a coping strategy were significantly related to higher psychological well-being. Satisfaction of autonomy and relatedness needs was related to greater achievement of social development milestones. 

Conclusion Greater satisfaction of psychological needs, in particular autonomy and relatedness, was related to greater psychological well-being and social participation. These modifiable factors may be amenable to intervention for those who report reduced well-being or social participation, particularly those transplanted in childhood.